Friday, October 16, 2020

This Year, Everybody in: Abilities Expo Virtual Experience Nov. 20-22

Great news - like everything else this year, the Abilities Expo will be online. You, you, you and you are all going!

Whether you're in the market for equipment or not, whether you have money or not, going to the Abilities Expo is a good idea for people with disabilities and their families. You're seeing some of the latest tech available on the market. Service organizations come out to show you what's out there to take advantage of. There are excellent and fun presentations by experts and entertainers alike. And tons of people with disabilities and their families to see, to meet, to swap ideas and numbers with. I come away with new ideas to talk out, new numbers to call, new websites to check out, new friends to email, brand new energy.

Of course you got to get their first. Sometimes that's a hassle or an impossibility. The Abilities Expo only takes place in six cities every year. Good for the folks near those cities, right, but what about the rest? And of course Covid wiped out the in-person Abilities Expos earlier in the year, all canceled.

Well the great news is that the circumstances leveled the playing field for everyone, and the Abilities Expo goes completely online from Nov. 20-22. Everybody can attend, for free. All the exhibitioners, service orgs, presentations (Tony-winner Ali Stroker!), all waiting for us to visit in our jammies.

Good on ya, organizers!

I already said Free free free, but first you gotta register.

November 20-22, 2020

Online Globally

Accessible 24 hours a day starting Friday, 9 am PST.

Friday, October 9, 2020

Cedar Hills State Park: the Forest by the City ... n ANTS!

1570 West FM 1382, Cedar Hill, TX (18 mi. from downtown Dallas)

972-291-3900, Cust serv: 512-389-8900, Website

Site 124, Loop H

Woods and lake 20 min. from downtown

Upfront, this park is overrun by invasive Argentina ants. They are small, an eighth of an inch, and seemed pretty harmless, although Texas Parks and Wildlife warns they could mess with your electrical system. TPW is upfront about them and gives guidance how to protect you and your vehicles.

Not this kind of ant

The ant hordes are for real! We brought along insecticide. Mab sprayed down all contact points with the ground (wheels, jacks, connections and the undercarriage). She did this a couple of times. So we did everything TPW said to do. Yet by evening, we were overrun. It turns out the heavy afternoon rainshower had washed the bug spray off of the water hose and electrical hookup (we were preoccupied with a different drama: a broken skylight cover leaking) and the ants seized their opportunity.

Exhausted, we kept it together for the night. Once we left, a day of spraying knocked out 99 percent of them. So, whew, it was a happy ending.

Lesson learned: take the warnings seriously (we did) and remember to respray after rainstorms. TPW ought to plainly state that. Writing the letter now.

Still here? Here is the rest of my writeup, pre-ant:

        The first stop on our trip.

We got out hours before Hurricane Laura: one of its rain bands had already reached up to us from 400 miles away. A few hours later, we pulled into Cedar Hills Park on another Texas scorcher, 110° heat index. Just being in a state park at least puts your mind in a cooler state. True to the name, lush cedar trees are everywhere, one of my favorites. Red and gold sunsets over the lake were visible from our trailer. Also Jupiter passing above the moon. There are five hiking trails here, of all skill levels. One is an easy two-thirds of a mile, described as family-friendly, that I never got to check out. Busy guy.




Site 124, Loop H, is an ADA site 50 feet deep, level concrete, and plenty wide for clearance all around. Electric, water. Dump station in the park. Verizon and T-Mobile good signals. At the back, privacy and a covered picnic table that's wheelchair accessible. Fire pit. Lots of space between sites. Steep drop-offs from one side of the pad. At the front, a crack across one side of the pad could be a problem for some wheelchairs, and same for a slight lip where the pad joins the trail road. Bathrooms and showers right next door. 



Mab's hikes campgroup

Lakeshore (inaccessible)


Throughout this trip I kept thinking about my grandparents. I was seeing things they never did. As refugees they saw plenty of Europe, but mostly stayed put where they settled in the American Midwest. One of my grandfathers visited the Pacific Northwest. Decades later we bought him a monkey puzzle tree like he saw there, and he planted it in Michigan. My grandmother went with us on a fantastic roadtrip to Arizona. But most likely they didn't see any of what I was seeing. I look through their eyes, and they see through mine. I have their DNA after all, and some of their inherited consciousness and sensibility. It's their grit and vision that got me here, after all. So I am seeing for them, with them. I like it that way better. We all would enjoy this trip.

Nearby flight museum crammed with planes, Frontiers of Flight

and messylicious vegan eats, Spiral Diner

Wednesday, August 19, 2020

Gulf Islands Natl Seashore / Ft. Pickens / Pensacola - Castles in the Sand

Gulf Islands Natl Seashore     228-230-4100

Fort Pickens  1400 Fort Pickens Rd., Pensacola Beach, FL            850-934-2600

There are fees (recommend buying the America the Beautiful pass for all natl. parks & sites)


        Driving around downtown Pensacola, and the area around Plaza Ferdinand, the park where Gen. Andrew Jackson (later, president) accepted control of Florida from Spain, you are struck by the foreign influence in the buildings. I don't know what you call this architecture, but anyone who's been to New Orleans will recognize the same 2-storys with shops below and apartments above, with covered walkways on both floors. The foreign flare comes from the port of Pensacola having been ruled under 5 different flags: Spanish, French, British, Confederate and American.

Right there at Jordan Valley Cafe (201 S Jefferson St, Pensacola, FL, 850-505-3528) we stopped for spiced potato salad that bummed us out when it was gone. Tabbouleh was delicious and fresh, same for the hummus with pita. Crazy good, smiles all around. That kind of meal.

Naval Air Station Pensacola has incredible visitor attractions, like Blue Angels simulators. Too bad it was still locked down (Feb. 2020) from a shooting incident months earlier. We were definitely on edge after making a wrong turn down the road to the front gate when we knew very well the place was locked down because we'd tried to get in the day before. I'm pretty sure we bypassed a sign saying the base was closed, only because it's a narrow road with no turnoffs. And here we show up in our outsized and unmarked white cargo van. Creepy enough? But the sentries were good to us. Phew.


The day was too cool for Pensacola Beach. We went on to cross the bridge to the barrier isle (why does crossing the water always makes me sing?), heading to Gulf Islands National Seashore. A single road stretches about 8 miles to the western end of the island. You pass rolling white sand dunes topped with brown grasses, but we weren't here for beaches. On the western end stands Fort Pickens, which makes for some excellent wheelchairing around.










Pickens' big guns guarded the coast from the 1830s until 1947. The ruins are a complex of brick, cobblestone and concrete. It's not one for the postcards, but was a playground for me. I plowed my wheelchair all over this place. In it, around it, through it, Fort Pickens was mine. I couldn't get everywhere: there are a lot of chambers and a whole top-level of parapets and outlooks I couldn't access. (Which bums me now that I write about it.) There are plenty of rough, bumpy sections, and narrow, inaccessible doorways. But listen, I was a kid here. I went everywhere, investigating stuff, on my own. I want one of these in my backyard. I went until I was exhausted! Mab and these chill people we met were kept coming at me with different nooks and areas for check to out. After a while I told them, Enough, stick a fork in me, I'm done. And that is what I my search is for.


Built by slave labor, including Geronimo.








We wandered to the fishing pier across the road. Plenty of people, and as you scan through the crowd, wait, go back - there, standing perfectly still like a floor lamp was a tall, spindly seabird, about 3 1/2 feet tall. I swear he averted his eyes when we spotted him. He was undercover, in plain sight.


See him? Undercover, baby. 


        The 10-year-old next to us said, "He's been here the whole time I've been here. If you don't watch, he steals bait. I went to my cooler and when I came back I think two of my fish were gone."

Smooth operator. 




Sunday, July 26, 2020

My Opa and the ADA@30

Thanksgiving is my favorite holiday, because there are no hidden motives.  It's all there in the name.  There's no manual, no fine print, no telemarketers.  Observe it religiously, secularly or with a simple nap in front of the football game: you can't mess it up.

What a cool holiday, where you appreciate what's in front of you now, instead of focusing on what you still want.  Where do the Black Fridayers fit into that? I like watching cartoons.

As thankful as I feel on that day, it doesn't compare to my parents, both of whom are immigrants and refugees.  They know Thanksgiving, and their parents did too.

Maybe it's age, but I tend to think about my grandfather on that day and this day too.  Opa died over 40 years ago.  He still teaches me stuff.

Already before he came over, he was in a chair. In his early twenties they slapped a polio diagnosis on him after the fact, but they never knew what hit him; they certainly didn't know MS back then, if that's what it was. (I doubt it: his arms would have destroyed mine in arm-wrestling.)  After Ellis Island, he came to Chicago.  In 1955, there was no such thing as accessible housing.  I wonder how many times he got to feel the sun and breeze on his skin in the final 20 years of his life.

They cast away their wheelchairs and wouldn't be stopped...
ADA activists' famous crawl up the Capitol steps, 1990.
 
Opa was a big man, and to me the smartest in the world. I would lug over his huge atlas and sit on his lap, and he would tell me about a new country.  I was fascinated to learn that China was thousands of years older than the U.S.  So I assumed then that every country had its own calendar; later, on a visit to Canada I silenced an entire room when I asked, "What year is it up here, anyway?"  Way to represent.

He was good-natured and strong.  It break my heart seeing him struggle across the carpet to the apartment bathroom when my grandmother was at the factory. I think back with amazement after writing that sentence: that I actually see that? I did. He hissed with effort, but I never heard him complain.  Saturdays he filled a bucket with suds and scrubbed down floors.  He didn't post it on Insta. That was what he did.

A generation later, my life, next to his, is boundless.  We each are blessed with a strong, hard-working wife and loving family.  But I live in an accessible home in an increasingly accessible nation.  I own a power wheelchair.  I order accessibility devices delivered off the Internet that to him would all be science fiction. In my garage is a van with a powered lift.  I write books, plays, columns on an affordable computer that operates by the sound of my voice.  Also operate my lights, fan, radio stations from around the world and everything else through the Echo Dot, all easy as Open Sesame.

Opa had none of this, but he sang.  He smiled.  He laughed at Granny clunking Jethro Bodine with an umbrella on an old sitcom: I loved that crazy hiccuping laugh.  He gave thanks simply for being in America.

This life of opportunities is an accident of time and place.  Opa and I were born on opposite sides of the Americans With Disabilities Act, that 30 years ago today began opening doors for millions like me. Thirty years ago I was hospitalized for the first time with MS. A nurse said, This is a big deal. It's going to change the world. 

So today I remember the people who fought to create the ADA. I remember my Opa, and wish he had even a little of this.  He tried so hard, without his courage my family wouldn't be in the US, and he should have had this. I remember, and give a lot of thanks.

Wednesday, July 22, 2020

Hacks for Troubles handling pills


Got an email: My mom's hands seem to be losing the sense of touch. Has anyone invented a tool that she could use to pick up pills? If she has three in her hand, she will drop at least one of them.

So we started digging:

- Mab's idea is using those large daily pill dispensers, and at dosage time, pouring the pills into a cup or a mug with a handle.

- Wet your fingertip.

- "We resort to putting the pills in a little applesauce and if handling a utensil is not as problematic as fingering an object – it’s an alternative. The pills stick to the applesauce and they go down smoothly, as well." Mab said: not too much applesauce, because you don't want them dissolving before you get them down.

- Or push them into a Fig Newton (but what about biting into the pills?)

- “Dropping pills is a problem for anyone with hand issues (e.g., arthritis). A shallow silicone bowl to tip pills into lets you see what you have & makes it easier to get pills, by gripping table, not allowing pills to roll away, & providing wall to help catch.” e.g., the ezpz Happy Bowl

- Double-shot sized shot glass for the meds.

- Pour pills over a felt tablecloth or contrasting color mouse pad below to see if a pill fell out.

- A single-pill dispenser.

- A pharmacist pill tray.

Any ideas? Comments appreciated.


Wednesday, July 15, 2020

Easy in the RV: Mexican spiced red lentils

Another one that puts together easy. It comes from Denise Wright (MyLifeCookbook.com). It's spicy and hearty, right up there with chili. Mab likes it on rice, but we tried it with macaroni the way my mother always eats chili and now that's my favorite. Vegan, whole food plant-based, fits the OMS Diet.

It's a go-to for us, one of our "Dirty 30" favorite easy-to-make dishes.


Active time: 5 minutes
Total time: 35 minutes
Serves: 4

INGREDIENTS
1 cup red lentils
3 cups water
1 Tablespoon olive oil
1 cup onions, chopped
1 can diced tomatoes
1 1/2 teaspoons cumin
1 Tablespoon chili powder
1 Tablespoon garlic powder
1 Tablespoon onion powder
1 Tablespoon paprika
1 teaspoon salt
1/2 teaspoon cayenne powder
1 teaspoon crushed garlic

INSTRUCTIONS
1. Add your olive oil and onions to a pot and cook until they are starting to brown.
2. In the meantime rinse your lentils and set aside.
3. When the onions start to brown, add the rest of the ingredients and bring to boil.
4. Once boiling, turn down the heat to a simmer.
5. Cook for 10-15 minutes or until lentils are tender.
6. Garnish with sour cream and cilantro if using.

NOTES
Replace sour cream with cashew cream.

Sunday, July 12, 2020

Primo Cool Italian Bean Spread for Summer

Mab's come up with a creamy summer spread that's vegan and tasty. It's Cannelini Beans with Sundried Tomatoes, Kalamata Olives  and Capers, and fits the Jelinek OMS diet (whole food plant-based, low sat fats and oils).

It's a hot summer, we want to eat something cold. With this in mind Mab retires to her Maboratory and whips up these concoctions that fit the midday bill perfectly: they're satisfying but don't weigh you down, plus easy to make in the RV. She's a great scratch cook: give her a few ingredients and she'll whip up something good.


"I was thinking of Salad Nicoise when I made this - why I don't know, since they are nothing alike except for the olives & tomatoes.

Cannelini Beans (mash to a consistency you like - these mash easier than chickpeas)
Sundried tomatoes in olive oil w/ italian herbs (chopped up)
capers
Kalamata olives, chopped
green onions, sliced
veganaise
basil
oregano
garlic powder
onion powder

"Serving idea: on bread with spinach leaves; also good with jalepeno or banana pepper slices."

She's come up with four of these summer bean sandwich spreads, including a black bean Tex-Mex and a Deviled Hamless spread with pinto beans. She's writing down the recipes and I'll post them and others that work in the RV.

We'll be taking them on the road soon.